When we talk about mental health, we’re not just discussing abstract concepts or clinical diagnoses; we’re sharing parts of our very lives, mainly when those discussions stem from our own experiences. As someone who has lived with schizophrenia, I’ve been invited to numerous conferences to share my journey. While this is an incredible opportunity to educate and advocate, it also brings challenges. Today, I want to talk about the complexity of sharing personal stories in public spaces and how I navigate the emotional landscape that comes with being a patient advocate.
The Weight of Vulnerability
Opening up about one’s mental health journey in a room full of strangers isn’t easy. There’s a vulnerability in sharing personal stories, especially about something as misunderstood and stigmatized as schizophrenia. Each time I’m invited to speak, I feel a mix of honor and apprehension. The honor comes from being recognized as someone who can contribute meaningfully to the conversation. The apprehension? It’s the fear of being exposed and judged and the resurgence of memories I’d sometimes rather forget.
Managing the Emotional Toll
Over time, I’ve developed strategies to manage the emotional toll of these speaking engagements. Here are some methods that have helped me and might help you if you are in a similar situation.
1. Preparation is Key
Knowing your material inside and out can significantly boost your confidence. I refine my speech, anticipate questions, and prepare thoughtful answers. This preparation helps me feel in control and reduces the anxiety of unexpected moments.
2. Embrace Stress Management Techniques
Before stepping onto the stage, I practice stress management techniques such as deep breathing, mindfulness, or a brief meditation session. These practices help ground me and manage the physiological symptoms of anxiety.
3. Setting Boundaries
It’s essential to remember that you control the narrative. Decide in advance what parts of your story you’re comfortable sharing and where you draw the line. It’s okay not to disclose everything; protect your mental space.
4. Lean on Support
I bring a friend or colleague who understands my journey and can offer emotional support whenever possible. Knowing there’s someone in the audience who’s got your back can be incredibly comforting.
5. Professional Guidance
Given the nature of my profession and personal experiences, I cannot understate the importance of therapy. Discussing upcoming speaking engagements with a therapist provides me with additional strategies to handle anxiety and ensures I’m not navigating these feelings alone.
The Power of Sharing
Despite the challenges, sharing my lived experience with schizophrenia at conferences has been profoundly rewarding. It has allowed me to connect with others, contribute to reducing stigma, and advocate for better mental health understanding and care.
To those in similar situations, know that your story has power. Your experiences can illuminate, educate, and inspire. But in doing so, remember to care for your mental health with the same fervor you advocate for others. You’re not alone in this journey; there’s strength in sharing and safeguarding your well-being
